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Sandysounds

OT but relevant - children with ADHD and other probs

Sandysounds, 29 January, 2010 at 13:50 Posted on Planning 0 30

I noticed on quite a few threads that there's a few of us on here with children with problems, so I thought it might help to share as my son is now 18 and I'm through the other side!!!! And I couldn't be prouder of him.

He was always demanding and difficult, and clearly had learning problems although he appeared to be quite bright at times. He survived primary school, mostly because he was in the same school that i was a deputy in and all the staff were very aware of his behavoural issues and learning difficulties so accomodated them. ie. needed everything explaining more than 3 times (even simple instructions), poor concentration, inability to sit still (Used to watch television hanging upsidedown on the chair) compulsive behaviour (pushing buttons and turning dials everywhere we went....often with disasterous results, .........the list goes on)

When he went to secondary school it was a disaster.........he spent most of his time standing outside the door with his hands on his head.....the staff just couldn't cope with him. He eventually got diagnosed with severe ADHD, auditory dispraxia and mild dislexia. Put on rentokill (ritalin) I thought things would improve....but then he was being excluded for longer and longer periods from school and at aged 13 the school told me he wouldn't be entered for any GCSEs at all....basically they wrote him off.

I wasn't having that! So i set about finding a new school for him. By chance I got talking to someone on the internet in Somerset whose son sounded very similar. She told me about a school down there....some 300 miles from where i lived. To cut a long story short I sent him there as a border (its a state school not private so no tuition fees). He came off the rentokill, took 7 GCSEs, achieved a few grade C levels and is now in a local 6th form topping up his qualifications before deciding whether to go into further education or the forces.

What a turn around eh? And its all thanks to the school that saved my sanity....Brymore School of Rural Technology, Somerset. Basically the only criteria for entry is that the boys are not achieving their full potential in mainstream. He had to go for an interview. Classes were small and staff really knew how to get the best out of the boys. On the site of the school is a farm. All the boys are fully involved in running the farm which was timetabled in with the academic subjects. So he'd have to get up early some mornings to milk the cows, then go to a maths lesson, followed by work in the forge, then another academic etc. He did engineering NVQ and all other things that he wouldn't have had opportunity to do such as driving a tractor or managing a garden (they produce veg for the kitchens to use) in a standard secondary school. There were lots of practial things (including loads of sport)...and that is what i think kept his attention.

I hope that little ramble may be of use to someone.

30 replies

Latest activity by 3d jewellery, 3 February, 2010 at 21:39
  • 3d jewellery
    3d jewellery ·
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    What a heart warming story and how brave of you to let him go. My son is much more disabled ,but I have found help through dolphin therapy in the US if anyone ever wants any info on that.

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  • The BFG
    Beginner August 2010
    The BFG ·
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    Thats very reassuring Sandy! your story did make me giggle (i hope you dont mind) when i read the bit about watching TV upside down - that is sooooooooo Lucas! where exactly in Somerset is this school? - Farleigh College is in Frome in Somerset, its about a 40 minute drive from us x

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  • Sandysounds
    Sandysounds ·
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    Its in Cannington, Bridgwater. Here's a linky to their website https://www.brymoreschool.co.uk/

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  • MsJackson78
    Beginner March 2010
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    Hi Sandy

    Just wanted to say I work with young people who often have LDD needs but are also in the care system. It is sooo nice to hear a proud mum and a success story as a lot of the kids I work with could achieve so much more if only they had the support they require from a loving & patient parent like you. Well Done to both you and your son!!!

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  • S
    Beginner June 2011
    samisheen ·
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    That is a great story especially to us mum's who have these problems... again the hanging upside down watching tv is so George, he has adhd but he also has aspergers syndrome. I love him to bits even when he is still talking away 8 hours after he started lol.. wouldn't have him any other way xx

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  • Sandysounds
    Sandysounds ·
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    Do you find that they are very affectionate. Even at 18 and 6ft tall he's still comfortable to give me hug infront of his mates. Mind you.....I now leave the floor when he does it!!

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  • S
    Beginner June 2011
    samisheen ·
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    Yes George is very immature and loves cuddling up on the sofa but it has to be on his terms, he is 11 but more like a 9 year old

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  • The BFG
    Beginner August 2010
    The BFG ·
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    Lucas does too, and yes he is very affectionate (although he had this a bit skewed at one point, he would bite people, but it was only the people he liked/ loved that he would bite) and loves babies, he also responds very well to men.

    He is almost 12 but still loves thomas the tank engine and hoobs, he is a lovely boy , he does drive us nuts, makes us giggle with the things he say's and does but that's Lucas for you!!! ?

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  • S
    Beginner June 2011
    samisheen ·
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    George is the same with sponge bob.. think we have seen each episode hundreds of time lol

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  • The Sock Chicken
    Beginner August 2010
    The Sock Chicken ·
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    My nephew is 13 and has ADHD and Aspergers. Out of my 4 nephews (17,15 &12) he is the politest and always notices and comments on things like me having a new hair cut or wearing something different. He is also very affectionate and is the only one who still comes for a hug. He has not been as lucky at school as some of your stories on here, but touch wood is now in a school which deals with his problems better.

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  • HWS
    HWS ·
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    My eldest (son - 18yrs) has ADHD and Aspergers Syndrome.

    We went through the whole Ritalin phase, we had a doctor from the US who was supposed to be leading the field.. odd little chap he was.

    My eldest Daughter (13) has Dyspraxia, although not formally diagnosed with it, we and everyone else who has to deal with her agrees.
    In fact she is having a harder time at high school than my lad. My lad actually works at the school now in their IT department.

    My youngest daughter (10) is perfectly normal.

    With or without their problems etc, wouldn't change them, they are who they are.

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  • The BFG
    Beginner August 2010
    The BFG ·
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    Well, Lucas was excluded from school yesterday for a day and a half because he hit someone in the face (there had also been some kind of altercation on friday) whilst i completely support the schools descision to do this Lucas did 'warn' us a while ago that things were getting strained and that ''people were peeing him off and that getting peed off is his greates weakness and if they carry on he will just punch them'' this was something we told the school about at parents evening before christmas, Lucas has also been coming home saying that a couple of girls had been hitting him around the head, we had spoken to one of his tutors about this and are still waiting for them to get back to us!

    The general feeling is that Lucas definately is not coping in mainstream (hmm i hate to say i told you so!!) and that he needs more specialist provision so this temporary exclusion may infact help our case.

    He is due to go back to school tomorrow and we are to meet with the learning director for his year group at 8.30am.

    Lucas is currently still extremely agitated now and last night was an absolute nightmare!

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  • The Sock Chicken
    Beginner August 2010
    The Sock Chicken ·
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    This is the problem my nephew had - he was constantly getting into trouble for hitting other kids. My sister was constantly going up the school and explaining that J was getting bullied by a group of kids who knew how to make him lash out and get him into trouble. It was always at break times in the playground. My sister has battled for years to get him extra help from school and it took him getting expelled to get the help he needed. I am still not convinced that the school he is in now is the right place for him as there are a lot of kids who are worse than him with a wide range of behavioural problems, a lot I don't think are even medical. Basically a lot are just there because other schools have labelled them unteachable.

    Where he is, its a unit which is part of a mainstream school but where the children in it are kept seperate. They only do lessons in the morning and only basic subjects. In the afternoon they do activities (some I'm not sure are educational at all!) They go shopping and do cooking, go to the cinema, swimming, do mechanics on motorbikes. All sorts of things. They also get fed constantly (which I'm not sure I agree with) I think this is to keep sugar levels balanced to control moods, but not sure. All I know is that it's all funded - a taxi picks him up in the mornings and all his meals are paid for and trips paid for too. And he seems to be keeping out of trouble!

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  • S
    Beginner June 2011
    samisheen ·
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    Reading that is like reading about my George... one of his biggest problems is the other kids winding him up... he will retaliate one day soon. i totally sympathise with you Lorna... is Lucas taking any medication. George takes 3 different ones.. one for his adhd one for his autism and one to help him sleep. we have found that the one for the autism has calmed his anxiety levels down which is good, the adhd is a new one so just waiting to see what impack it has on him x

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  • The BFG
    Beginner August 2010
    The BFG ·
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    Lucas is currently on concerta 36mg and 4mg of melatonin at night we are due to have the melatonin reviewed on 20th and he may be put on anti axiety meds then, but im hoping if we get him into the right setting there will be no need for antin anxiety meds.

    Zippy, im really worried that the LA will do a similar thing with Lucas and try to place him in a local school for kids with behavioural problems where as that is not his primary need yes he can be 'naughty' at times but the majority of his negetive behaviours are as a result of his anxieties and lack of apropriate support, this is why we are seeking legal advice to make sure we have a rock solid case to get him where he needs to be! x

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  • S
    Beginner June 2011
    samisheen ·
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    I didn't want to medicate George, i tried everything possible first, he has melotonin to sleep, Risperdal for the autism which i have to say is brilliant and his new one is medikinet xl. he has only just started taking the last one because in the last month he has become very manic and we just cant do anything with him... the problem with special units is the possibility of the children regressing to the level of the other kids...x

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  • The BFG
    Beginner August 2010
    The BFG ·
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    I totaly agree with that which is why i wouldnt want him to go with the LA's choice of school, with Farleigh College he will be in a specialist school for pupils with asperger syndrome its a relaxed environment which works with each of them as individuals, he will be given maximum potential to take GCSEs, go into further education, get a job and lead as an independant life as possible.

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  • S
    Beginner June 2011
    samisheen ·
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    I have heard good reports of that college.. do you live near? there is another one which is very good too in kent x

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  • The BFG
    Beginner August 2010
    The BFG ·
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    We are about a 45 minute drive from it, people have asked me how i would get him there??!!! well it will be a fight enough to get him a place there so im not sure the LA will provide transport but i will give him a piggy back if i have to! there is the option to board but we are looking at a day placement and in all seriousness if we do get him the place there and we are responsible for his transport, i will have to most likely go back to working just night shifts x

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  • S
    Beginner June 2011
    samisheen ·
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    It's never easy is it.... we had to fight even to get george diagnosed... started pushing when george was 3 finally got him diagnosed at 9..x

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  • The BFG
    Beginner August 2010
    The BFG ·
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    For us the diagnosis wasnt a problem, as Lucas has had problems since he was just months old, initially being rushed into hospital with suspected menengitis, from then on it was follow up appointments all the way, which i began to dread as there always seemde to be another symptom appearing - at one point the docs thought he also had muscular dystrophy and he was refered to a neurologist at Bristol Childrens Hospital its getting support and the right provisions that has been the problem for us, we have also just filled in his latest DLA renewal form OMG i would rather do my GCSE'S again!!!!

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  • S
    Beginner June 2011
    samisheen ·
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    I hate dla forms they make me feel like a criminal... lol i always remember when george was at play school a lady used to come in from an outside organisation. she said to us on a number of occasions that george had complex problems but not to worry because the school will deal with it... thats a laugh!!! his primary school were very good with him buy never pushed to get him diagnosed.. they seemed to not want to have to admit they had these special needs students there x

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  • Sandysounds
    Sandysounds ·
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    Lorna and Samisheen...I'm totally with you on what you're going through. Everything is always a battle. My lad was easily wound up and would lash out. At the school I took him out of it was as if as soon as something went wrong, they would look at him first and he was always to blame. He was always punished rather than have his behaviour dealt with and the source of the problem identified.

    Getting him seen by a specialist was a nightmare. When the ADHD team finally got him on their books they were fantastic and very supportive, but without the support of his school i still couldn't get him statemented......hence the rash decision to send him to a school 300 miles away.

    Being in an environment with staff that fully understand them, have time to deal with their quirks, makes all the difference. I was very anti putting him in a school with all children of a similar disposition as the role model s aren't there. The thing with the school i chose, Brymore, was that there was a real mix of children....some really bright but not coping with mainstream etc. There were two lads in his year that had been excluded from private schools, not because they had medical problems, but more because they didn't fit and had resorted to misbehaving.

    At 18 and now in the big wide world, he can still get wound up....but he's now got methods to deal with it. Its quite a while since we've seen a flying wardrobe or a broken window!!!!!!!!

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  • The Sock Chicken
    Beginner August 2010
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    Very similar to my nephew - at age 2 when he was throwing kitchen chairs across the kitchen/diner, the doctors were telling my sister he was going through the 'terrible twos'! All through primary school they used to complain about his behaviour but would punish him by making him stand in the corridor or sit in the corner - and then used to wonder why he wouldn't stay there! They would often send letters home and my sister would plead with them to help to get him statemented so he could get help, and then they would back down and say he wasn't that bad! Thinking about it now it makes me wonder if the school were ashamed to have children there with special educational needs. J wasn't diagnosed till he was about 8!

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  • Sandysounds
    Sandysounds ·
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    OMG....thats almost a mirror image of my own experience!!!! (including the flying chairs)

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  • S
    Beginner June 2011
    samisheen ·
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    Academically George isn't to bad so they wont statement him.... it's in other areas he needs help

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  • Sandysounds
    Sandysounds ·
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    Trouble is its the 'other areas' that overshadow their actual ability....unless he's in a school that recognise his true potential....which is the problem I had.

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  • The BFG
    Beginner August 2010
    The BFG ·
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    Sandy is right as unless his needs are fully met, it will be come increasingly difficult for him academically - this is what im now finding with my eldest son Daniel who has the same diagnosis as Lucas but managed to 'blag' his way through primary school and the problems only became apparant when he moved to secondary.

    Where is George on the SEN code of practice? as he could well be entitled to extra support within that Lucas wasnt really struggling too much when he was statemented in November 2003, he was 5 then and had just started year 1 and had only just started attending school full time, but the whole statementing process started 6 months prior to that, Lucas was given 20hours a week 1:1 TA support and that was maintained for the whole of primary school and has continued to the equivilent within secondary, but even with that his needs havent been fully met and that has had an aditional impact on his academic abilities.

    All that said i really i am glad that you are not in that situation with George and that he is doing ok, just be aware at every step x

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  • S
    Beginner June 2011
    samisheen ·
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    He was on school actionplus at primary. we are lucky in a way at his secondary school because it is the lead school for autism in the area and they have a special unit he can go to if he needs to x

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  • S
    Beginner June 2011
    samisheen ·
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    Well i have just got off the phone from the deputy head of George's school. he informs me that George has been excluded till monday. his behaviour on the coach to and from school has got steadily worse (he is not alone there are other kids doing it to). same old story these other kids egg him on tell him to do things so he does then cant calm down... really not happy ringing the asd coordinator in the morning, this is always gonna be a problem for George but the LA wont fund transport for him as it isn't his closes school x

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  • 3d jewellery
    3d jewellery ·
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    Our local authority provide benefits advisors who will fill the DLA forms in for you I found that out when I had to go to appeal, theyw ere brilliant, they just chat to you and take it away and fill it in.

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