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Proud Mummy Post (but sad and scared)

Slippers, 17 November, 2008 at 18:57 Posted on Off Topic Posts 0 22

My beautiful little girl turned 5 a month ago. Tonight was parents evening and I met with her teacher and psychologist (she has Asperger Syndrome - a form of high functioning autism).

Anyway, the sum of it was she has an IQ of 136 and a reading age of 13. She's also at year 8 in puzzle solving or something. Obviously I am very proud but I feel so sad. She's clearly a very talented little girl and may well go on to a brilliant future. But right now, life is so tough for her. She struggles to intergrate even though she clearly so desperately wants to.

I was so proud that they told me she is a truly lovely person - kind and caring and very loving. I've tried hard to make sure she enjoys everything around her - taking her out at night to see the stars, to looking at nature through her magnifiying glass. I tell her how all people are special and that we should do our best to look after each other. She's a huge character with a love of planets and penguins and everything inbetween.

But she's so much an outcast. She makes friends, but they quickly loose interest because of her eccentric behaviour and there have been numerous times I've had to nurse her broken heart and tell her that people like her even if they don't always play with her and that she's a lot to give. But, if she has a sleep over, it's me who 'stays over' - do our nails, watch a movie and both sleep on her floor. She loves it (as do I) but it's not good because I am her mother but, really, her best friend. I take her to kids social gatherings and hang back as best I can, but it always ends in tears - hers first, then mine.

Everyone thinks her intellect is marvellous and I am proud of her, but her ability to read etc. (which she learned herself - not been taught) is symptomatic of a problem that make life hard for her.

Sorry, no real point to this. Just needed to get it off my chest and share.

22 replies

Latest activity by Missus Jolly, 18 November, 2008 at 11:04
  • I love shoes
    Beginner July 2008
    I love shoes ·
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    Big hugs to you and your wonderful clever little girl.. ?

    You sound so proud..

    (ps Your post has bought a tear to my eyes)

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  • Hungry Caterpillar
    Beginner
    Hungry Caterpillar ·
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    She sounds like a great little girl - no wonder you're proud of her.

    I'm sure it must be tough for you ? but she is very lucky that she has a lovely mum like you behind her to back her up and look after her when things make her sad.

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  • HaloHoney
    Beginner July 2007
    HaloHoney ·
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    I have a nephew with AS. It sounds like you are the best arent she could ever have dreamed of. ?

    Would it be possible to find her a pen pal of the same age?

    Or even me? I'd happily write emails to her if you would like, if it would make her feel special, and loved.

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  • Unique at last
    Dedicated January 2012
    Unique at last ·
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    Mine too.

    You have such a special little girl. You sound like you are doing your very best for her - and it will work. Other kids can be so cruel, both intentionally and unintentionally.

    I don't think you're doing anything wrong in being her best friend as it's different in being 'friends' with a non-aspergers child who will then loose respect for you and make your life hard. In doing these things, you are giving her an understanding of how to be a friend and have friends.

    I know it must be so hard for you and I know I'd be the same if I was looking at my child in the same way But I'd much rather have a loving girl who I'd have to help get over a broken heart many times, than one who would deliberately break the hearts of others.

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  • lobster
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    lobster ·
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    Being gifted or just different - in whatever way will always make life hard, especially as a child but it does improve as you get older and meet more people, you find those you fit in with more easily. I was one very lonely child till my A levels and fianly started finding people who thought like me but I have some amazing and truly lasting friendships now.

    As you said, be proud of her acheivements and of yourself, it sounds like she has a fab mummy.

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  • CeliaWelia
    Beginner January 2008
    CeliaWelia ·
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    Your little girl sounds amazing and you must be very proud.

    I echo what HH said about maybe finding her a penpal or something to make her feel special. I would also happily write to her (as would my 4 year old if she'd rather have someone closer to her own age!!)

    Keep doing what you're doing - you sound like a great mum!

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  • Iris
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    Iris ·
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    You must be so proud of her, she sounds fantastic. It's brilliant that she's so good at reading but as you say, it's isolating. Not much help I know but as she gets older the difference may well be less pronounced. I know with 5 year olds that every little upset is the end of the world for them and even more so when they have aspergers to contend with.

    I still think she sounds fab though and probably a lot of fun to have around. My collegue has an autistic son and things are much better for him now (at the age of10) as he's learned a lot of social behaviour. He's in a mainstream school and has plenty of support. They run a little social group for him now-he gets to choose a few (say 3 or 4) children each week for a session out of the classromm. I think it's only an hour or so but it's always a fun activity and as it's guided by him he's making lots more friends now. Is there anyway that her support worker could introduce something similar?

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  • S
    Slippers ·
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    What fab, fab people you are. Thanks so much for the support.

    Thanks so much for your lovely posts. Well, my lovely little girl is just dropping off right now with me sat on her bedroom floor. Apparently, my presence keeps monsters and witches out of here. We're going to watch Monsters Inc tomorrow.

    Thanks so much for the idea and offers of pen pal. Will definitely give that some thought because she reads emails etc. I'm also going to find a ballet class for her if possible. She's quite girly. I know I might have to start of doing it with her, but hopefully, as her confidence builds, I can hang back.

    She's come on so much in the last year or two - I know things will improve and, as long as I have breathe in my body, I'm there for her all the way.

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  • JK
    Beginner February 2007
    JK ·
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    Slippers were you someone else before?

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  • Zebra
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    Zebra ·
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    I'm sorry she's lonely and doesn't make friends easily but she sounds brilliant and it sounds like she will find her niche in life in time.

    ?

    Are there any support groups for children with Aspergers who can make suggestions on how to help her make friends?

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  • essexmum
    Beginner August 2009
    essexmum ·
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    You sound like such a great mummy to your daughter. Be proud of your daughter as she sounds wonderful, however be proud of yourself as she is who she is because of you!

    If you need a penpal may I suggest my daugher, although 8 going on 9 she is also incredibly girlie, loves reading and writing (she's always got a note book and pen in her hand) and would love an email penpal herself!

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  • S
    Slippers ·
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    Hi JK,

    Yeah, it's me, Cathi.

    Essexmum, you have mail.

    Thanks all. This place is brilliant.

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  • essexmum
    Beginner August 2009
    essexmum ·
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    I've sent you a Private message as for some reason when someone sends me an email from here I never get it!!!!!

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  • Puss
    Beginner September 2004
    Puss ·
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    Oh Slippers, she sounds amazing (I bet P would love her, they would bond over penguins!) and you have every right to be proud of such a wonderful bright little girl.

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  • *ginni of the lamp*
    *ginni of the lamp* ·
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    She sounds amazing, and so do you actually.

    On the social side, does she have anything she really loves? Could you maybe invite a couple of other girls (or boys of course) over to do some specifically structured activities around something she loves, and could share with others? It would be hard work, but it might be worth a try - then she could feel she'd had friends over and there wouldn't be the exposedness of them possibly playing without her?

    I think things will improve as she gets older. I recently read 'A friend called Henry' about that boy whose dog was the key to improving his autism (it was dramatised on TV last year) and it wasn't until he was older that he started making some good friends who would put up with (sorry, not the right turn of phrase, but you know what I mean) his oddities and accept him.

    I know how you feel (well, a bit), when any children come over to ours they ignore Daniel completely and just play with Anna.

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  • JK
    Beginner February 2007
    JK ·
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    Cathi, go you know anyone with older children? TBH, I can't imagine Rowan at 5 being ready for sleepovers. I wonder does she come across to other kids as disproportionately mature? I'm thinking that her vocabulary and reading skills will set her apart, but maybe an older child will be able to manage this. Do you have a local support group where she can meet other children with Aspergers?

    Lexi's always been curiously popular for an autistic child, largely because he'll accept any amount of girlish attention and bossing - he's used to it, Rowan is a tartar ? His comparative lack of language has been an advantage - their expectations of him are minimal. But it makes for a woeful school experience, and we're hanging out for a special placement. And only yesterday his teacher asked me if it was ok if he skips the school performances, as he can't really participate. That made me sad.

    It's not easy, is it?

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  • Sare
    Beginner September 2002
    Sare ·
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    Cathi I'm sorry C is hurting so much from not having friends and I hope in time her peers will accept her.I work with two girls with Autism and I've been amazed how accepting the other children have been.

    Perhaps the reception class is still very new to them and they're still trying to make sense of it thermselves, and once more settled will get used to C and the way she is.

    I'd gladly send her an email, and one from Harvey, although it will have to be written by me as we're just mastering CVC words here!

    It seems so strange that 5 years ago we were on BT together and discussing how you were going to go through labour not allowed to move, and here we are with 2 children at primary school.

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  • Redbedhead
    Beginner August 2006
    Redbedhead ·
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    She sounds like a lovely little girl. I hope some of the children her own age realise that soon.

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  • Mrs Magic
    Beginner May 2007
    Mrs Magic ·
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    ? Cathi. Your little girl sounds amazing, she really does. ? I'm sorry times are tough for her and hope as children get a bit older and wiser, she'll have lots of friends. I agree with JK about perhaps her socialising (for now) with older children. In the mean time, keep enjoying each others company, it's so nice you are buddies.

    I would happily write to her too. I'd cover the paper and envelope in stickers, I'm good at that. She doesn't need to know I'm actually an old biddy in comparison to her.

    Much love xxx

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  • Zo�
    Beginner July 2009
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    Slippers your daughter sounds like great fun, its a shame that her peers don't really understand. I hope as she gets older it will be easier for her. Its other people that are missing out on her friendship.

    A pen pal sounds like a fab idea. As does the interaction with older children.

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  • N
    Beginner January 2007
    noone ·
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    She sounds like an absolute star!

    check out Americas Next Top Model - Heather

    She has Aspergers Syndrome and she was my favourite !

    http://images.chron.com/blogs/tubular/archives/heathercgirl.jpg

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  • WifeyLind
    Beginner April 2006
    WifeyLind ·
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    It sounds like you have an amazing daughter there slippers.

    One thing I thought of is would she be happy in a Brownie group? You say she's a girlie girl (which they are very good at being!) but they also provide basic life skills from an early age, including integration with other young girls outside of a schooling environment. Plus, Brownies can do sleep overs now too so she'd possibly get the opportunity to go. And as long as the leaders are fully aware of your daughters needs they will be able to factor that into their meetings. And if you feel uncomfortable with leaving her at the meetings, you could always stay as a 'helper' as they are always crying out for additional adults to help with groups - who know's it could turn into a hobby that you could share together.

    There is a girl in the Ranger unit which I was involved with before moving here who has Aspergers and she'd been through the whole guiding experience from Rainbows and has made good friends over that time.

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  • Missus Jolly
    Beginner October 2004
    Missus Jolly ·
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    Hi, our nine year old daughter has Aspergers too. She sounds an awful lot like your little girl (high but uneven IQ, early reader, ridiculously amazing memory). I have found being the parent of a girl with Aspergers quite isolating in the past. So much help and information is geared towards boys and is irrelevant (I personally believe that Aspergers manifiests itself very differently in little girls). However, it is three years since our daughter had her final diagnosis and I have to say that things are much, much, easier now than they were then. I won't lie and say that it is a bed of roses (what parenting is?) but we are very proud parents indeed and wouldn't change her for the world.

    Anyway, I'm waffling. You are most welcome to PM me, now or in the future.

    Edited to add that WifeyLind is spot on about Rainbows / Brownies. Our daughter was a Rainbow and is now a Brownie, she loves it.

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