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Liver tumor & surgery (piece of string)

Lurker, 3 April, 2008 at 18:00 Posted on Off Topic Posts 0 14

I was diagnosed with a hemangioma (8x6cm)in 2006 and have recently had to have a follow up ultrasound and it has grown (11x9cm and takes up almost the whole of my right lobe) however it is unusual for hemangiomas to grow, so its likely to now be something else.

I was referred to a liver professor who I saw today who mentioned that surgery was almost inevitable and it would involve removing the whole right lobe, but have to firstly have a MRI scan (next week) to determine exactly what it is.

I am terrified and wondered (the piece of string question) how long the op might take and how long I would have to stay in hospital for (the hospital is about an hour from home, friends and family).

14 replies

Latest activity by Lurker, 3 April, 2008 at 21:20
  • Z
    Beginner February 2008
    Zoe2 ·
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    ? Sorry to hear the news, I think you really need to speak to your doctor about your questions, but there is probably a website or forum for sufferers on the internet somewhere

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  • Allice
    Beginner August 2007
    Allice ·
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    Sorry, can't help but wanted to offer you a ?

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  • L
    Lurker ·
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    Thanks girls.

    I'm not worried about what it might be, the Prof today gave me good odds on it being benign, its just the surgery that terrifies me.

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  • Zoay
    Beginner September 2013
    Zoay ·
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    These are guesses but just to give you a starting point;

    Operation taking about 2 hours, stay in hospital 3-4 days.

    ? to you

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  • L
    Lurker ·
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    quote:Originally posted by Zoay
    These are guesses but just to give you a starting point;

    Operation taking about 2 hours, stay in hospital 3-4 days.

    ? to you
    id="quote">

    Thank you (and I do understand its impossible to say for sure) - 2 hours is good, 3-4 days not so good
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  • pigalicious
    pigalicious ·
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    My husband has just had a tumour removed from his left foot along with a toe,last week. He was in down in theatre for a total of 3 hrs and was in hospital for 3 days.

    I think it's an individual thing and these questions need to be directed to your consultant in all honesty.

    Best of luck and I hope it all goes well for you?

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  • L
    Lurker ·
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    quote:Originally posted by pigalicious
    My husband has just had a tumour removed from his left foot along with a toe,last week. He was in down in theatre for a total of 3 hrs and was in hospital for 3 days.

    I think it's an individual thing and these questions need to be directed to your consultant in all honesty.

    Best of luck and I hope it all goes well for you?
    id="quote">

    Thanks. I know you are right, but I heard the word "surgery" today and kind of switched off, and won't see the consultant again for a few weeks. I know it was a silly (and impossible to answer) question.

    Hope your husband feels better very soon.
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  • NickJ
    Beginner
    NickJ ·
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    Lurker, where are you based? i had a trisegmentectomy to remove a hepatocellular carcinoma, which was similiar in size to yours.

    i can give you a run down of the recovery if you wish.

    i also dont udnerstand why the guy said they may have to remove the lob in its entirety. mine was across all three lobes, and my surgeon managed to deal with it.

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  • L
    Lurker ·
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    quote:Originally posted by NickJ
    lurker, where are you based? i had a trisegmentectomy to remove a hepatocellular carcinoma, which was similiar in size to yours.

    i can give you a run down of the recovery if you wish.

    i also dont udnerstand why the guy said they may have to remove the lob in its entirety. mine was across all three lobes, and my surgeon managed to deal with it.
    id="quote">

    I'm in Surrey and it was the Guildford Nuffield Hospital. Actually the consultant who referred me to the Prof said that if it was a hemangioma then the lobe would have to be removed with it, but I guess if its something, then that might not be the case.

    I think I would like a run down on recovery (or will it just terrify me more, I'm really not very brave)

    What you had sounds scary - sorry you had to go through it.
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  • NickJ
    Beginner
    NickJ ·
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    Well, you can always get a second opinion. my guy is prof J Peter Lodge in Leeds - he works at the bupa leeds, and st james's. you say the nuffield which indicates youre private anyway - you could ring peters sec and get your MRI results sent up there for a second look? he s pretty much acknowledge as being the leading light in terms of liver surgery.

    in terms of the procedure, i wont tell you about that, but recovery wise, i was in intensive care for 4 days, then in a room for 4 more days before going home. he did tell me though that thats unusual, the stay is usually two weeks - depends on of course on the specific nature of the surgery etc. i was told i may need a transfusion, but thankfully i didnt.

    i can go into detail about what to expect when you wake up if you wish.

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  • L
    Lurker ·
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    quote:Originally posted by NickJ
    well, you can always get a second opinion. my guy is prof J Peter Lodge in Leeds - he works at the bupa leeds, and st james's. you say the nuffield which indicates youre private anyway - you could ring peters sec and get your MRI results sent up there for a second look? he s pretty much acknowledge as being the leading light in terms of liver surgery.

    in terms of the procedure, i wont tell you about that, but recovery wise, i was in intensive care for 4 days, then in a room for 4 more days before going home. he did tell me though that thats unusual, the stay is usually two weeks - depends on of course on the specific nature of the surgery etc. i was told i may need a transfusion, but thankfully i didnt.

    i can go into detail about what to expect when you wake up if you wish.
    id="quote">

    Yep, I've got BUPA through work thankfully. My Prof is Nariman Karanjia and, for now, I'll see what he says. He told me today that the local liver specialists get together weekly and compare cases so that each case will have 7-8 surgeons opinions, rather than just his.

    Crap about the 2 week stay and double crap about intensive care (I had a scary 4 days in one with my Dad a few years ago, not nice places, but I guess I wont know much).

    I'm so grateful that what I have is 95% likely to be benign, but I cant believe I have to have what seems like major surgery for something that is in no way affecting my life, I have no symptoms, no problems and this was only found during a routine blood test as I almost fainted 2 years ago (which has never happened since).

    Nick, I would be grateful if I could put a shout out for you again in a few weeks when I have a firm diagnosis and know more about what I am facing, if thats ok with you? Thanks though for the straight talk.
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  • NickJ
    Beginner
    NickJ ·
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    Yes thats fine. if i dont respond by the end of a day send me an email via my profile.

    not wishing to push you at all, but this guy is the only surgeon in the uk who s done the particular surgery i had. he s done 8, and has a good success rate. he s also done over 140 other cross-lobe tumours with the highest level of success in the world. yes, the world. not wising to be dramatic, but this type of surgery is risky, and you need the best.

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  • L
    Lurker ·
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    quote:Originally posted by NickJ
    yes thats fine. if i dont respond by the end of a day send me an email via my profile.

    not wishing to push you at all, but this guy is the only surgeon in the uk who s done the particular surgery i had. he s done 8, and has a good success rate. he s also done over 140 other cross-lobe tumours with the highest level of success in the world. yes, the world. not wising to be dramatic, but this type of surgery is risky, and you need the best.
    id="quote">

    Thank you.
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  • Zoay
    Beginner September 2013
    Zoay ·
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    Just for more reassurance, hopefully, removing one (probably) entire lobe is a much easier/smaller job than what Nick has been through.

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  • L
    Lurker ·
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    quote:Originally posted by Zoay
    Just for more reassurance, hopefully, removing one (probably) entire lobe is a much easier/smaller job than what Nick has been through.
    id="quote">

    Thanks Zoay, that is reassuring.

    I know I really jumped the gun with this question, but I'll hopefully know more in a few weeks when the results are in and I've seen the Professor again.
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