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Mrs Magic
Beginner May 2007

Long term ill hitchers and those in the know, can I have your thoughts please? Meds related

Mrs Magic, 29 July, 2009 at 13:23

Posted on Off Topic Posts 36

Disclaimer, I'm not seeking advice on what to actually do and obviously would never act on anything without first seeing a doctor. I would just like to get some thoughts. My health condition is two-fold. Lupus is obviously my main condition but in connection with that, I have "Major Depressive...

Disclaimer, I'm not seeking advice on what to actually do and obviously would never act on anything without first seeing a doctor. I would just like to get some thoughts.

My health condition is two-fold. Lupus is obviously my main condition but in connection with that, I have "Major Depressive Disorder". Today I have also been diagnosed with Osteopenia following a DEXA scan and from 5 years of steroids.

I'm on a LOT of drugs and hate seeing anyone other than my main GP because I am so embarrased about it. Most GPs tell me I take too much but the GP I saw today seemed horrified and quite worried about me. It just leaves me so confused.

For my lupus: (prescribed by Rheum Prof)
Prednisolone: 10mg x 1 daily (I had managed to come down to 8mg but I'm going up to 10mg again as I'm not doing to well)
Hydroxychloroquine: 200mg x 2 daily
Azaiothioprine (Immunosuppressant, I'm off this as a test until I see Prof next month)

For pain: (this was the cocktail I left hospital with after I had my pain assessed over a week and prescribed by my Rheum Prof)
Paracetamol: 500mg x 8 daily
Dihydracodeine: 30mg x 8 daily
Gabapentin: 300mg x 6 daily
Ibruprofen: 400mg x 3 daily
Tramadol: 50mg when absolutely necessary and something I rarely take unless I'm in a lot of pain. One pack lasts months.

For depression (prescribed by psychiatrist)
Amitryptiline: 175mg (yes you read that right) x 1 daily (I used to take >75mg for sleep/pain)
Zopiclone: 7.5mg x 1 daily

And
Bonviva: 150mg x 1 monthly
Osteocare: x 2 daily

The main cause of the GP's concern was the Amitryptiline and the Zopiclone. I was telling him I had felt dreadful after starting Zopiclone last week, I really have felt awful and it has taken me 3 days to get the energy to actually go to the GP. The Psychiatrist prescribed me an extra 25mg of Amitryptiline and the Zopiclone as I was starting to slip depression wise and as hitched knows all to well that my worst moments were late at/during the night, which he very much wants to avoid. GP thinks I should consider stopping Zopiclone or at least halving the dose to see how I go.

Every new GP I ever see in the practice (bar the one I have come to know very well who agrees with it all) is always worried at my pain killer levels and without fail will ask who has given me so much. I would very much like to take less but if I still get pain on this cocktail, what would it be without?

I would really like your thoughts on what I take and does it seem excessive to you? I would also be reassured to hear your similar tales. ?

36 replies

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    Becs S ·
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    Hi (I have been a lurker but this has made me post, I hope thats ok).

    I have just been moved from Tramadol, dihydracoedine and others, (depression and other pain meds) onto patches and Oxycontin/oxynorm. I have noticed a diference in how I am as have others, someone I hadn't seen for a while commented that I seemed a lot more together. I now take less tablets but am more 'with' it, if that makes sense? Yes I am still tired but it not as much as a zombie tiredness.

    I don't know if this is any use but I really struggled with the decision to move up a class of medication but it has been worth it.

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  • Mrs Magic
    Beginner May 2007
    Mrs Magic ·
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    ? Welcome to Hitched Becs, of course it's ok and I hope you post more now you have taken the plunge!

    Thank you for sharing your experience, it's good to hear it has worked for you and very reassuring! I'm so glad it has been working well with you and been worth it.

    Can I be nosy and ask what your condition is? Is it auto-immune too? ?

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    Becs S ·
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    Not nosy at all, mine is the result of a car accident and injuries to neck, back, shoulder and arm. I have only been on this new regime for a little over two months and still trying to get the doseage right but I do hope when it is all settled that I will be able to perhaps get some energy back and do 'things'. or even be able to read a book without forgetting what it is I am reading!

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  • Mrs Magic
    Beginner May 2007
    Mrs Magic ·
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    Ouch, you poor thing. ? I hope you get to the right dosage soon! Ah energy and reading a book, my long lost friends! ?

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  • Lumpy Golightly
    Expert February 2003
    Lumpy Golightly ·
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    Oh Madge - it sounds hideous - you poor girl. i have no advice but wanted to send you a big virtual hug. You deal with all this so bravely xx

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