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*Eclair*
Beginner August 2012

My blood test results are in, I am allergic to..........

*Eclair*, 26 October, 2012 at 11:12 Posted on Off Topic Posts 0 43

Dust.

Awesome. Because it's really easy to avoid that, problem solved.

I am glad I know now though, means I get to be referred to an allergy clinic who might do something other than give me steroids.

The doctor also said I might have something called hyper-IGE syndrome, has anyone ever heard of this or know anything about Immunoglobulins? (I know this is a long shot as even the doctor admitted he'd never heard of it, and had to look it up on wikipedia [:'(])

43 replies

Latest activity by *Eclair*, 29 October, 2012 at 15:28
  • (Claire)
    Beginner July 2011
    (Claire) ·
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    Although I've never been medically tested I'm pretty much certain that I am too.

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  • Flowmojo
    Beginner
    Flowmojo ·
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    crieky, this isnt something ive ever heard of?!?!?!

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Apparently it's quite common, my mum is allergic too although she gets different symptoms to me. It's actually the dust mites rather than the dust itself.

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Thanks for the links EF. I did have a quick google but it scared me. I did read that it affects your connective tissue so I'm wondering whether it's linked to my hypermobility syndrome. (Why do I get all the random syndromes no one has heard of?!!)

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  • Flowmojo
    Beginner
    Flowmojo ·
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    is this the bendy thing? when your joints can do alsorts?

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Yep. Basically over stretchy connective tissue. My knees bend backwards. The syndrome part comes in when it causes you pain.

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  • Flowmojo
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    Flowmojo ·
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    ah i knew it, my friends little girl has just been diagnosed with it, shes 4 years old!

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  • Pittabre
    Pittabre ·
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    Well howdy? I'm hyermobile as well and have lots of weird things going on because of it. I'm intolerant to tomatoes and kiwis and latex but when I went for allergy testing it came back negative for everything and the Dr testing me said the etsts weren't that good<sigh>

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  • Kriek
    Beginner December 2012
    Kriek ·
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    I'm sorry if I've missed your previous posts on this but I presume you have some kind of asthma and/or eczema?

    I have asthma and am sensitive to dust but I've never been properly tested for it as my symptoms are fairly manageable. Best advise I can give from an asthmatic point of view is to keep your bedroom and bedding as clean as possible. Use pillow protectors to reduce the dust getting into your pillows and vacuum your pillows and mattress fairly regularly. If I stay at someone else's house and the room is dusty I waken up in the middle of the night really chesty and it takes me a few days to shake it.

    I'm quite surprised your doctor hadn't heard of it to be honest, I actually think it's really unprofessional to admit to looking up wikipedia rather than a proper medical source to advise you. Have you been referred to a specialist?

    Imunoglobulins are anti-bodies. I don't know a huge amount about it as I've only studied basic physiology and pharmacology but I would try not to read too much online before seeing a specialist as it could send you into a panic.

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    It's not fun. At least she's been diagnosed early so can try and work out what helps her. Mine was put down to growing pains until I was 17 when they decided that 15 years of growing pains was a bit much. I'm lucky that I don't have it too badly. Some people need constant pain relief and occupational therapy.

    Just read that one of the symptoms of this hyper- immuno-thingy syndrome is "coarse facial features." Am now wondering if there's anything wrong with my face ?

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    We should start a club. Tizzie's got it too if IRC. Being intolerant to tomatoes must be a pain. I was worried my results would show a food intolerance to something I like, so quite relieved in that respect.

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  • Pittabre
    Pittabre ·
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    Actually I think its sign of a good Dr to admit they don't know everything rather than acting all-knowing which a GP isn't. But wikipedia is a crap resource if thats what you mean? If that is the case then yep that is bloody rubbish?

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Hi Kriek, thanks for the advice. Yes I have bad eczema, but just on my feet. I only get wheezy/itchy eyes if I breathe in a lot of dust. He had the wikipedia page open when I went in, I know it's not the most professional but at least he was honest. I think he was a newbie as he had to ask another doctor how to refer me to the allergy clinic ?. I'd rather an inexperienced doctor than the one who told me to just get over it any day.

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  • Pittabre
    Pittabre ·
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    My tests came back clear for kiwis, latex and tomatoes? But I react pretty quickly when it comes to them! Even if I don't know they were in what I was eating! I love tomatoes and kiwis but not bothered about latex?

    How 'bad' is your HM? Mine is mainly in my knees, hips, shoulders and jaw. The worst affected is my right hip which pops out randomly. I suffer from TMJD in my jaw which is my biggest PITA at the moment. I constnatly seem to ahev chest infections, have irritable bladder syndrome and suffer from stomach ulcers. Life is a laugh a minute! Oh and I suffer from migraines but haven't had a proper one since my Ex left - bizarre coinidence!

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  • far2calm
    Beginner May 2012
    far2calm ·
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    Snap.... I'm allergic to dust to, but I now seem to have it under crontrol and possibly *touches wood* grown out of it. You can buy bedding that helps, its a cover you zip over the matress and then sheets over the top, also get the same thing for pillows. Little things like dusting with a damp shammie leather stops as much flying around.... I do lots of things that are now just a way of life.... but will try and think of things and let you no.

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    My HM is in my knees, elbows and hands. I can twist my wrist all the way round. Was a good party trick to freak people out before I realised it made the pains worse. I get horrible cramps if I stand for too long or if it's cold. The hip popping sounds horrible, poor you! At least your ex has one use in life (I've lurked on BT a bit, he sounds lovely ?)

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  • Pittabre
    Pittabre ·
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    Snap! I used to do all sorts of party tricks until I found out it made things way worse! Foot behind head stuff. My Ex was lovely until he became my Ex, now he has become really weird☹️

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  • **Pip**
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    Another one to add to the club. When my H gets anything out of the loft I start getting wheezy, my eyes and my throat hurt and I cant stop sneezing. Even if I hold something that came straight out of there. I remember he wanted me to sort through some bags of clothes and I felt awful. I have asthma too though so I imagine they're related.

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  • Kriek
    Beginner December 2012
    Kriek ·
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    Yeah I was meaning using wikipedia as a source. I absolutely agree that they should be honest if they don't know as obviously GPs cannot know everything and it would be impossible to keep up to date with all current literature in medicine.

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  • Pittabre
    Pittabre ·
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    Surely they msut all be told about gpnotebook.com on first day of training??

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  • Missus S
    Missus S ·
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    I don't know much about that other condition but I have a dust allergy. I don't think it's half as bad as some but if I don't take my steroid spray it like having permanent non stop cold.

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  • S
    Beginner October 2011
    SuperSpud ·
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    I'm also allergic to dust (and dogs - rather awkward as we have two). I'm so very allergic to cats (my lips swell up - again rather awkward as both H's sisters have cats).

    Hope the allergy clinic can help you.

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Thanks everyone.

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  • R
    Beginner August 2013
    RebTheEck ·
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    That's probably because you knew you reacted to them so avoided them before having the test. I had a blood test done a few years ago (York test I think) and it looks for something in your blood that shows up after you've come into contact with the problem item. It recommends eating the items you would normally avoid before taking the test - that is unless the reaction is that bad it's life threatening.

    I always assumed I had an issue with wheat because I suffer if I eat too much bread. Turned out it wasn't wheat but yeast that was the problem.

    Also have issues with cow's milk I now stick to goat's milk & yoghurt.

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  • raincloud
    Beginner August 2011
    raincloud ·
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    I'm allergic to dust too (and fur and feathers) it sets my asthma off. Easy to avoid though. I use a vacuum that helps with dust allergies and vacuum regularly, use a damp duster when I dust (or get H to do it!). If I do need to do dusty things - clean garage for example - I make sure I wear something over my mouth and nose, open all the windows and doors to keep the fresh air flowing and take regular breaks in 'clean' air.

    I'm not obsesive about cleaning though as I do think that allowing yourself to have some contact with things that you have allergies to can help you build an immunity to it. I have no medical knowledge on this though it's just what I have found for my own allergies - all of which can be controlled with an inhailer if needed - so don't advise anyone else tries it!

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  • BumbleBrat
    BumbleBrat ·
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    Can anyone else see this as a good excuse to make other people do your housework, no? Smiley laugh

    I only have two allergies that I'm aware of - Kiwis and sunlight.

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    I texted H this morning telling him I now have a medical excuse to make him empty the hoover ?

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  • *JLS*
    Beginner July 2012
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    I went to an allergy speciallist last year as I was getting really bad hives and we couldn't tell what was causing them, I was prescribed extra strong anti-histamines and told to wait and see how they worked. They didn't so I went back, this time I was told to not take any anti-histamines for a couple of days before I went and guess what - no hives!! When I told my doctor this, he didn't believe me as he had never heard of anyone being allergic to anti-histamines so basically told me I was making it up. We have tried on a few different occasions with taking them again to see what happens and I get the hives again. I wish my doctor had decided to look up for other instances on the internet!!

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  • *Eclair*
    Beginner August 2012
    *Eclair* ·
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    Ah the classic "I don't know what it is so you must be making it up" excuse. Was the original problem caused by hayfever medicine or something? That must be a pain.

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  • *JLS*
    Beginner July 2012
    *JLS* ·
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    Yep, I used to have to take them for hayfever and for dog allergies (my in laws have a golden retreiver which comes over a lot) so it has been a real struggle for me since giving them up.

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  • Tizzie
    Beginner June 2012
    Tizzie ·
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    Yep me too!! Well remembered.

    Mine is okay most days. It's my ankles, knees, hips, shoulders and wrists. Oh and my jaw which clicks constantly. In fact h just told me when we were eating out dinner he wanted to punch me it annoyed him so much! My back is really bad and I'd say my knees were the worst I physically have to hold them upright they just bend back otherwise. My hips can be very painful and this cold weather doesn't help. Physio said my body was showing signs of normal wear and tear for a 60 odd year old. I'm 22!! Doesn't help that my job involves being constantly on my feet!

    My consultant told me I had hm, gave me a one page leaflet and said "avoid contact sports" very useful that was!!

    I am very susceptible to infection and illness, constantly have a uti or kidney problem and usually feel sick and dizzy. I also think I am allergic to latex, some food colourings (the raspberry jam at work leaves a rash on me if it touches my skin) also gluten I think. I think hm goes a lot deeper and affects you in more ways than anyone realises though.

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  • *Mini*
    Beginner January 2012
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    I'm allergic to dust. I sneeze constantly.

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